Cpap data retreival

Discussion in 'Experienced Truckers' Advice' started by buckmanmike, Apr 19, 2019.

  1. x1Heavy

    x1Heavy Road Train Member

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    Not really.

    There has been experimental work done, but it is STRICTLY EXPERIMENTAL. FDA has some incredibly strict rules and laws towards experimenting on humans.

    I don't think it is curable anytime soon, as in several generations. Im pretty sure someone will find a way to fix it with a operation and cause the FDA to approve this formally to be used as a surgical cure for CPAP patients. Like 30 years from now.

    I feel fortunate that I am with doctors who are a sort of patriots themselves and support my position that if I don't complain about sleeping problems they are not going to force CPAP on me. I already made a hard decision that is fixed and irrevocable that if I am sick with sleep apnea it will just have to be untreated and leave it be. When it's my time it's my time. However if something develops to where it's formally accepted to chop out the affected area that causes breathing problems and fix it pernamently via surgery one time. I'll go give it a shot. But I will never in this life time use CPAP or submit to such monitoring of such. One big reason is that it costs thousands of dollars and continues to cost money with no cure in sight. Just a milking of cash cow on and on and on. That's NOT going to happen with me for that. I already know that I will never be able to sleep with that abomination on my face and there is no point.

    This is not intended to be a troll, rant or anything distracting. As far as downloading the data, you should have absolute freedom to take the data onto a memory card and transfer to the doctor's office in your pocket everything on that data so that the doctor will know to see where youre compliant.

    WHAT I REFUSE TO ACCEPT is any kind of propietary software or some kind of money locking of this data so that the Patient will need to pay even more money each month to access the required data anyway. I also refuse to FLAT accept any new CPAP or future machines that strictly designed with NO USB Port for memory sticks and requires a subscription with money and a special connection to download data which then has to be paid again to transfer to the doctor in some form without direct patient control. Possibly paying a third fee each month so the doctor in his or her office can access this data without allowing the patient to change, download or edit in anyway.

    It's all about money and more money from more people diagnosed with this thing because their necks are big.

    This whole Sleep apnea was not a issue until about 15 years ago and suddenly America teeters on the brink of starvation because millions of truckers cannot breathe at night in the truck and unable to safely deliver the food. That's BS. We have been trucking for 100 years without too many losses without any of this technology or quackary related to apena until very recently.

    If you want people to get some sleep at night, stop running society as a intense stressful 24/7 no sleep living. Taco bell does not have to be open at 3 am. They can close at 7 PM after dinnertime like everyone else used to do back in the 60's except that which is mission critical to the Nation such as Power plants and military etc. Then maybne things will slow down, destress and you will have all kinds of hours in which to rest at night.
     
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  3. Brandt

    Brandt Road Train Member

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    They have surgery for sleep apnea. They cut the lose skin in your throat. It just like anything else it not 100% successful.

    Has anyone notice you don't hear all the drivers the TV rooms at truck stop sleeping anymore or hear them gasping for air? I remember hearing guys all the time. Everyone thought those guy were snoring.
     
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  4. TheDudeAbides

    TheDudeAbides Medium Load Member

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    I was diagnosed with sleep apnea when i was with Crete and they had me do a study. Bought the CPAP and it was remotely monitored to check my data, no problem. Move forward a few years and I’m getting my own physicals as I’m an owner op now with a different company and i bring my CPAP with me for them to check the data and the DR says “do you use it?”, i answer yes religiously and couldn’t imagine not using it and he tells me good enough for him. I’ve never had to report any CPAP data since then even though i do use it nightly and wouldn’t wanna be without one.
     
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  5. Ridgeline

    Ridgeline Road Train Member

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    He stopped working on the project, the software is still there. I think he was complaining about attempts to hack into the accounts and he just stopped working on it.
     
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  6. Ridgeline

    Ridgeline Road Train Member

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  7. Scooter Jones

    Scooter Jones Road Train Member

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    People were also false flagging his software in open source venues. Probably punks from the manufacturer's who don't like the fact that he created software that is better and allows users (like himself) to access their own data.
     
  8. Scooter Jones

    Scooter Jones Road Train Member

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  9. ttypewe4jim

    ttypewe4jim Light Load Member

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    correct around 25k to have it implanted also keep in mind the device will only work for 8 years, they do have a grant style assistance program for it as well. I was heavily looking into having this done, I'm one of the few lucky soles who still has issues even with a full face CPAP machine. For me the restriction is mostly caused from my jaw line and neck build. To complicate matters when I was 9 I broke my neck in a motocross crash which caused a farther alignment issue. This year I'm debating about allowing them to try a surgery in which they will essentially "break off" my upper and lower jaw and graph in material to extended it out, then take a laser assembly into my throat to "burn" the airway open more, if I give the surgery a green light I will have to have my jawline wired closed for at minimum 5 months sigh. Doctors have told me even if I weighed 110 pounds at 5 10 I would still have really bad apnea lol.
     
  10. Scooter Jones

    Scooter Jones Road Train Member

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    Wow, that's rough.

    Biggest misnomer(s) out there is that only "fat people" have sleep apnea, along with, "sleep apnea is a scam".
     
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  11. Ridgeline

    Ridgeline Road Train Member

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    It is an alternative, insurance covers it if you can't use the cpap machine.

    I have to add, this entire sleep apnea thing is real but the approach that companies take is not. I have to deal with it with some of my drivers and the BS I went through for my DOT to be valid was horrible. SO I understand the frustration but if we want to get it changed, it won't take much.
     
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